Privacy, confidentiality, and health research / William W. Lowrance.
The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Proble...
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Full Text (via ProQuest) |
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| Main Author: | |
| Format: | eBook |
| Language: | English |
| Published: |
Cambridge :
Cambridge University Press,
2012.
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| Series: | Cambridge bioethics and law.
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Table of Contents:
- Cover; Privacy, Confidentiality, and Health Research; Series; Title; Copyright; Dedication; Contents; Preface and acknowledgments; 1: Introduction; Health research as a public-interest cause; Privacy protection as a public-interest cause; Health data vulnerability; The challenges; 2: Data, biospecimens, and research; A few essential notions; The e-health revolution; Data and databases; Biospecimen collections; Public research resource platforms; Degrees of sensitivity; Data and biospecimen ownership; What is research, anyway?; 3: Privacy, confidentiality, safeguards; Privacy; Confidentiality.